The Janssen Horizon Fund, for health innovation, is launching a call for projects for the Humanities and Social Sciences (SHS) with the theme of care practices centered on the autonomy and emancipation of the patient.
Medical evolutions, capable of transforming the relationship of care and the status of the patient, make a new alliance between medicine and the humanities complementary to that between medicine and science indispensable and urgent. It is a question of being interested, on the one hand, in the power to act of the patient, its “empowerment”, and on the other hand, in the use of new technologies as a device of care.
The transformation of the care and health system adds value in terms of quality and safety in the organization of care, to promote adherence and encourage home care of patients with a reduction in cost (hospitalization + travel) . This transformation has many medical interests, but can also raise ethical and ethical issues. “Health democracy exists, grows and develops. Our goal is that it benefits everyone and contributes to the improvement of our health system, “1st Forum of the Institute for Democracy in Health, 02/2016.
In this new call for projects, Janssen Horizon focuses on the patient’s power of action, from the point of view of health democracy. It focuses on the contemporary figures of the person in care, the passage of the patient to the “user of the health system”, as stipulated in the law of March 4, 2002, in a space of rights (his experience), as that subject of rights (in the medical field).
This call for projects is about:
- Use and acceptability of technological innovations for patient care and follow-up:
Examples:
– The place of health E on the care and follow-up of patients, and its acceptability. The contribution of new drugs in precision medicine (the most appropriate treatments for a given patient population, theranostic biomarkers allowing a greater personalization of the treatment),
– Health information systems, the security of medical information, the use of medical data for research purposes for the benefit of patients,
– Modeling and simulation of “simple surgical acts” at home (Biomechanics, virtual reality, immersive environments, …),
– Medical devices used by the patient, implantable devices
– Medical robotics and patient assistance
2. The patient and the power to act
Examples:
Actors of research and therapeutic development
– The involvement of patients in the decision-making, writing and implementation of clinical research protocols, (examples of research protocols in HIV infection, rare diseases),
– The participation of volunteers in national epidemiological cohorts, to better understand the early biological signatures of complex diseases (neurodegenerative diseases, cancers, …), and better prevent them.
Actors in the care path
– Studies of support programs for vulnerable populations
– Questioning of therapeutic education and its actors
3. The conditions and limits of empowerment: power and counter-power.
CLOSING DATE
NOVEMBER 12, 2018 – 11:59 PM
All information and submit his project: https://www.janssenhorizon.org/appel-a-projet/le-patient-autonomie-et-emancipation#
